Each day from October 5-12, I will post one of my
mother’s recipes (my favorites of course), how FTD has affected my family and a
little bit about the AFTD.
What is
Frontotemporal Degeneration?
FTD can affect language and ability to communicate. The person with FTD may develop problems
speaking fluently, understanding words, reading and writing. This is known as primary progressive aphasia
or PPA and there are several forms. Some
people become hesitant in their speech and begin to talk less, but appear to
retain the meaning of words longer (non-fluent variant). Others have difficulty understanding words
and recognizing objects, but retain the ability to produce fluent speech
(semantic variant).
How has FTD
affected my family?
Two of the scariest things about this disease began
shortly after my mom’s diagnosis. She
began having hallucinations and she began wandering. She would see rats in the corners inside the
house and snakes outside. She would also
see people watching her. She would go to
the guest house on their property where my grandmother had lived years ago. She would go there to visit with her. My grandmother died back in the ‘80s. She also had a difficult time sleeping and
would get up in the middle of the night and turn on all the lights. This was frustrating for my dad who was
losing sleep afraid that my mom would wander off in the middle of the
night. Some of this could have been from
new medications or it could have been from her brain deteriorating.
Before she got sick, my mom was faithful about walking
every day. When the disease set in, she
would take their dog and go for walks around their property. She stayed on the path that my dad had
carefully manicured. As the disease got
worse, she would forget to put her shoes on or tell my dad where she was
going. She quit taking the dog with her. One day my dad found her walking down the
middle of the street on a hot day, barefooted.
A couple of concerned drivers pulled over to make sure she didn’t get
hit by a car and called 911. Thank
goodness the sheriff’s department was understanding and let my dad get her back
to the house.
My dad has had to modify the house to keep my mom from
doing something that might injure her or someone else. He has put locks on the doors, he has turned
off the hot water faucets to some of the sinks in the house, he’s recently put
up a gate blocking off the kitchen so she doesn’t turn on the gas burners. He also found a guardrail for the bed that
keeps her from getting up in the middle of the night. This has helped my dad get a better night’s
sleep.
How can I help?
The first thing you can do to help is to learn as much as
you can about FTD and the Association for Frontotemporal Degeneration or AFTD (www.theaftd.org). The AFTD is a not-for-profit organization
founded to advocate for more funding into the causes and treatments of FTD as
well as provide caregivers and patients with a dependable source of accurate,
reliable information and support. The
second thing you can do is make a donation to the AFTD. Your support helps to promote and fund
research into finding the cause, therapies and cures for FTD. Please go to http://theaftd.givezooks.com/grassroots_fundraisers/alice-s-angels-food-for-thought-2014
and make a donation during our 2nd Annual Food for Thought week, October 5-12.
Alice’s Black-Eyed Peas
Serves 4
2 slices of lean smoked bacon
6 ounces ham, ¼ inch dice
½ cup red onion, chopped
1 jalapeno, seeded and chopped
1 clove garlic, minced
¼ tsp. salt plus more to taste
¼ tsp. pepper
¼ tsp. smoked paprika
½ tsp. ground cumin
1 15 ounce can diced tomatoes
1 15 ounce can black-eyed peas, drained and rinsed
In a 10-12 inch skillet over medium-high heat, sauté the
bacon and ham till it begins to caramelize, stirring occasionally, about 5
minutes.
Add the red onion, jalapeno and garlic. Sauté with the meat till veggies begin to
soften, about 3 minutes.
Add the dry seasonings and stir till fragrant, about 1
minute.
Add the tomatoes and bring to a boil. Cook stirring occasionally for about 3
minutes.
Add black-eyed peas.
Stir, bring to boil, reduce heat to low and simmer for about 5 minutes.
Lovely thoughts, Zoy. Food is a great lens to think about your mom through.(What about the fun chili cookoffs at your house when Duncan and I were first married?) Thinking about you and your mom and dad.... and your mom's black eyed peas. :)
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